No.215. 'Same old, same old.'

The mucous episodes continue. Sometimes in the morning things seem OK so Chris refuses the cough assist as he thinks he is will be fine. Unfortunately this usually means it has built up really badly by the late afternoon. This results in Chris gagging, choking and vomiting to bring it all up, making these episodes even more distressing than they are already are. Where does it all come from anyway? Our GP said we produce a litre of mucous of saliva a day! I can well believe it.

This is all helping to make Chris feel really low, that and the farm being sold, that has really hit him hard. We know it has to be done, but that doesn't make it any easier. Hopefully our week away will be the distraction he needs though it is a bit of a worry having to deal with all of this so far away from home.

I had a chat with the respiratory nurse in Plymouth. She said it is quite possible Chris may not be able to use the NIV because of his bulbar issues. That is not good. NIV would buy him some time. He still doesn't want a trachaeostomy either.....what to do?