Tuesday 7 July 2015

No. 204. 'The MND thief.'

There is a thief, an insipid, vile, creeping thief that comes in the night and comes in the day and it steals. It is stealing you and it is stealing you from me.

It steals your strength from your hands, your arms, your back, your neck, your legs, your feet, your chest, your diaphragm, your tongue, your throat, your mouth, your swallow.

It takes a bit day by day, what you could do yesterday, you can no longer do today, what you could say yesterday, you can no longer say today, the deep breath you could take yesterday, you can no longer take today.

It is subtle, it is sneaky, not always obvious, but it is progressively progressive. Bit, by bit, I see it. I can't stop it and it breaks my heart.

It tries to steal your spirit, but it cannot touch that, but that doesn't mean it does not affect you.
This thief frustrates you at what you can no longer do. It saddens you when you can no longer be understood, it isolates you when you can no longer eat, it breaks your heart with all the other things it has stolen from you and will steal from you, your home, your lifestyle, your job, your future with me, your future with your daughter and step son and step daughter, with your family.

But there are some things this thief cannot steal, it will not steal me from you, I will love and be with you forever, it will not steal your children they will also love you forever, they will never forget you. As much as it is trying, it cannot steal your inner spirit, it can test it and try it and weaken it at times, but it cannot steal it.

There is no happy ending for now with this cruel, cruel disease, but I will be by your side and pray for the strength to be all that you need and to care for you no matter how tough it gets.  

MND may steal many things from you, but it will never steal my love, our love...not ever.