He fell again and the choking happens to him even when he has puréed food. I am afraid to leave him when he is eating. He longs to get out for an hour or two, but getting 'dressed' up in his overalls etc is such an effort. I am glad he can still just manage to get out for now though.
I can't bare it watching him go through all of this, it breaks my heart. It breaks all of our hearts. Jordan, Tamara and Chloe feel it too. We feel so helpless. We can care, we can help, but it doesn't make it go away.
I hope Christmas will be a much needed distraction. We have a family get together here over the weekend for Chris's dad's 93rd birthday and then Jordan and his wife Tracey, Tamara and her boyfriend Karl and Chloe will spend Christmas Day together with us. I am dreading the Christmas dinner in a way, with Chris watching the rest of us eat the usual Christmas fayre, it will seem so cruel, but I am going to do my best to make that puree taste good and I am also determined we will have some fun too.
I try really hard not to look too far ahead, but I do get a llttle scared of what the next few months will bring sometimes.
The people are coming from the Dame Hannah Trust on January 7th to set up Chris's speech computer and eye gaze I think. He will be able to control the TV and Sky box from it and text from it too. The fact he has access to such amazing technology is brilliant, but it hits home that this progression and this disease is so very real. Ignoring it is proving to be very hard.
