Thursday 13 November 2014

No. 123. Thankful for the support.

Chris's MND nurse telephoned him for a phone consultation yesterday. As he is more unstable now when walking, she is going to contact the OT and get them to drop off one of those walking trolleys for him for in the house. He has had one or two falls and he actually fell in the hall yesterday evening so maybe that will be a good idea. Luckily he was only carrying a glass of water and not a hot drink as it went all over him. He did have a good laugh about it though

I also emailed her a copy of the letter from our MP and PALS at Peninsula Health trust, saying that after investigation, Cornwall Wheel Chairs will provide an EPIOC wheelchair if required. She is going to do some more digging on that too. It is good to know Tracy is there to help with these things.

Chris hasn't been getting out as much as the weather has been so miserable , but he made the most of it yesterday when we had some dry weather. I'm not sure he will venture far today as it is awful here today again.

We are both very grateful for the support team Chris has. We certainly can't complain, they have all been brilliant. It has made living with this disease for both of us a lot easier than it would have been and especially for Chris of course.