Sunday 12 October 2014

No.103. Not dead yet.

We patiently waited yesterday for the radio interview. Chris was quite emotional, not because he has MND, but because he said he had such a wonderful family, to be doing all they have. I told him that everyone loved him, he is not hard to love. The interview actually sounded OK and the only thing I think Duncan edited out, was where Chris got a little tearful near the end of the interview. Hopefully it will encourage one or two more people to come. If you are reading this Duncan, thank you for coming to interview us and for offering to host the fashion show, it means more than you will ever realise to Chris.

I also set up a Just Giving page for Chris where any money raised for the MND association because of him, could be donated. It's https://www.justgiving.com/TeamRobertsMND/ and I also set up a text link to donate, which is to text CROB58 £3 to 70070, so if anyone donates, thanks.

We had some family visit yesterday, Chris's dad gets quite emotional when he sees Chris. He told Chris that he didn't know how Chris coped with having MND. The way we see it is we have two options. We could all go into a deep depression, sit it a corner and give up, believe me that would be quite easy to do if we thought too hard about this or we just take it one day at a time. The human body is an amazing thing in how it adapts to certain things too. If Chris were to wallow too much in self pity then he would be wasting whatever time we have left. Each day has to be lived not mourned. We laugh at this disease when we can, we actually laugh a lot anyway, we always have, it is the natural panacea for any kind of pain. We have our moments of course we do, we cry, we dust ourselves down and we move on. Chris doesn't want to die, he has a lot to live for and he is not going anywhere without one hell of a fight. He's not dead yet and hopefully won't be for a very long time.

The body might fail, but the spirit fights on.