Tuesday 30 September 2014

No. 94. Life goes on with MND.

Busy day today, Chris has a physio visit, the dietician will be phoning, plus I have to make sure all of Chloe's stuff, plus a wheelchair will fit in the car. We are taking her back to Brighton tomorrow as she starts her second year at BIMM doing her music degree next week. 

Not looking forward to that in many ways, we will miss Chloe like crazy, but we are excited for her too as she should be recording her first EP in November and is excited to be going back. Thank the Lord for Messenger and Skype. It will be the first time I will have to drive the whole way home, a 7-8 hour drive depending on the stops. Chloe will share the drive up. I know Chris really misses driving, but his weak feet and legs make it too dangerous for him to drive now.

I managed to book a disabled access room in the Travel Lodge so there will be room for the wheelchair and Chris will be able to shower. We do love Brighton once we get there. We are going to visit a friend of mine too on the way home which we are looking forward to.

MND affects every part of your life, there is nothing we can do now with out having to consider it and it's consequences. It won't stop us living life though, we just have to plan things differently, like I've said before, can't let MND have all it's own way.