Motor Neurone Disease, fighting it together.

Hello, my name is Lesley Roberts and my husband Christopher, who was a farmer, was diagnosed with MND on May 5th 2014, sadly he lost his courageous fight with this awful disease on September 5th 2015. I wrote this blog to ,share our journey as a family with this disease, the good days and the the bad days and hope to raise awareness of MND in the process. (Follow on Google+ or on Twitter for updates at @soulpunkpixie, or sign up at the bottom of the page for email notification.)

Saturday 9 August 2014

No.52. Dark clouds and occasional sunshine

Sorry, the sadness struck again.

MND hangs over us like a big dark cloud.

We wake, it's there,

We eat, it's there,

We talk, it's there,

We laugh, it's there,

We cry, it's there,

We argue, it's there,

We sleep, it's there, especially then, when we snuggle up, there it is again, the constant twitching, the constant, physical reminder of MND's relentless quest to take my husband from me.

But when we laugh the sun shines for a bit, when we hug, it shines a little brighter and everyone who ever has or ever will be touched by this disease, knows the one thing that it can't take and that's the biggest and brightest thing of all, our love.