When the diagnosis of MND first hit us as a family, it was terrifying and unbelievable. So many questions, why, how, what? You feel so very alone because we knew no one who had the disease. Everyone you tell initially, family and close friends, they all cry with you and are all scared for you. Don`t get me wrong, our families have been wonderful, I`m not sure what we would have done without their support, but unless you are going through it , no one can truly understand .Slowly, via the MND association and social media, a positive thing in this case, I have discovered we are not alone. There are other people going through what we are going through, at different stages of the disease, brave people, battling on and fighting. There are carers who are doing the very best that they can for those they love. There are others, who are tirelessly fundraising and raising awareness and it suddenly felt like many invisible arms were bringing us into a very unique fold. It gives us hope as individuals and comfort collectively I think, that it may be a fight that one day some will win due to a cure being found. We know we have a long way to go as far as MND is concerned, Chris is still in the early stages, but it is comforting to know there is always going to be someone out there , who will truly understand what we are going through. So thanks in advance and love to all those with MND at this moment in time, may we give you a virtual hug back.
Edit: Just watched Ian Pratt`s amazing interview on This Morning, talking about the videos he is leaving for his daughter. I try not to allow myself to cry too much, but every word he spoke hit home, my heart broke for him and broke for us and everyone who has MND at the moment. Ian has become part of our virtual world and I send him and his family the biggest hugs. There is no cure, but there is so much love and there has to be hope too. Excuse me while I wipe a tear. Thank you Ian for raising awareness.
