Sunday 29 June 2014

No.13.Stolen futures.

After our lovely family celebration yesterday and reading about the very brave Ian Pratt, who also has MND and the videos that he made for his daughter for when he is not around, it kind of hit home about the celebrations that Chris will miss. He is more fortunate than Ian, he has seen his children reach adulthood, but the grief about the future lost is still there. None of the children are close to having families for various reasons, youngest daughter wants to travel after uni and so she should and it hit him that he will probably never meet his grandchildren or us grow old together. We have to live in hope though for the more reachable future, Chloe`s 21st, her graduation from BIMM in 2 years and maybe even our 25th wedding anniversary in 5 years. Chris is fighting to reach these events and God willing he will. Today my heart goes out to all those with MND, who have had their futures stolen, and I pray for a cure so future sufferers may get theirs back. The idea of writing this blog is to raise awareness, to give a taste of our reality of this disease and to hope that awareness multiplies fundraising and brings that dream of a cure ever closer.